2019 Novel Coronavirus

Unfiltered search of PubMed using common synonyms for Post Acute Covid Sequalae

Unfiltered search of the preprints servers medRxiv and bioRxiv for articles discussing Common Data Elements in Covid Research

Unfiltered PubMed search on topics related to PACS limited to Review Articles

Unfiltered PubMed for articles discussing Covid Infection in vaccinated individuals

Unfiltered PubMed for articles discussing Common Data Elements in Covid Research

Unfiltered search of PubMed for articles discussing Multisystem Inflammatory Syndrome in children post COVID-19

Unfiltered search of PubMed for articles discussing Covid Stress Syndrome

Unfiltered search of PubMed for articles discussing Myocarditis in individuals who received the Covid vaccine

Unfiltered search on Covid Vaccination and Long Covid

Unfiltered search of PubMed for articles discussing Paxlovid specifically for Long Covid

CoronaCentral uses artificial intelligence to create a portal to the biomedical literature focussed on SARS-CoV-2, MERS-CoV and SARS-CoV. It categorizes papers into a set of categories to make it easier to find relevant research and indexes by important concepts (e.g. drugs, proteins, locations, etc).

A dynamic review of the evidence around ongoing Covid19 symptoms (often called Long Covid). Published by the National Institute for Health Research (UK)

Survivor Corps is the largest grassroots movement in America dedicated to actively ending this pandemic. Long Covid resources include a listing of Post COVID Care Centers nationwide, along with connections to published research, webinars, caregiver resources and more.

Well researched and updated listing of Post Covid Patient resources, news and support groups.

Through a global network of COVID-19 patients, chronic illness allies, and health and disability advocates, Body Politic breaks down barriers to patient-driven whole-person care and well-being, particularly for historically marginalized communities by facilitating peer-support, cultivating patient-led research and public education, and leading community-based advocacy.

The ATS COVID-19 Resource Center provides free information to help healthcare providers, patients and their families manage a host of issues related to the COVID-19 pandemic. Content will be updated regularly.

Unfiltered PubMed for articles discussing Common Data Elements in Covid Research

Unfiltered search of the preprints servers medRxiv and bioRxiv for articles discussing Common Data Elements in Covid Research

Observations We identified 303 articles published before April 29, 2021, curated 59 relevant manuscripts that described clinical manifestations in 81 cohorts of individuals three weeks or more following acute COVID-19, and mapped 287 unique clinical findings to Human Phenotype Ontology (HPO) terms.

25 COVID-19 studies were included. For each, information regarding the specific data elements being collected was recorded. Data elements collated were arbitrarily divided into categories for ease of visualisation. Elements which were most frequently and consistently recorded across studies are presented in relation to their relative commonality.

The You + ME Registry + Biobank is a collection of patient-reported data + biological samples (e.g. blood) from people living with myalgic encephalomyelitis (also known as chronic fatigue syndrome or ME/CFS), people with Long Covid + healthy volunteers. Our large, rich dataset is used by researchers searching for treatments + a cure.

With the multitude of COVID-19 research being conducted, a common set of data elements is essential for efficiency in the study design process, increased power for discovery through aggregated data, and improved accountability for generalizability and reproducibility. The NHLBI-CONNECTS set of common data elements (CDE) are being developed in collaboration with the NHLBI-CONNECTS Study Design Core and NHLBI-funded research networks such as SIREN and PETAL. Trials funded through NHLBI-CONNECTS will implement these CDEs and make their data available through NHLBI’s BioData Catalyst data access and compute environment. Materials for each release of the Common Data Elements are available on this site. Please refer to the Release Notes for a summary of changes for each new version, as well as a preview of upcoming changes.